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Tuesday, November 28, 2006

Another Chapter

After six months of inexplicable anxiety attacks and ineffective medication, an MRI yesterday discovered the root of the problem. The sudden clenched jaws, wringing hands, disorientation and memory blips were not caused by anxiety, after all, but were actually miniature seizures. What the tests uncovered is a brain tumor resting on the temporal lobe above my boyfriend’s left ear.

I don’t yet comprehend what that means, but I imagine it as a black and angry hen jealously protecting its egg.

At 8 a.m. I left his loft to return to my apartment and get ready for work, while he headed to the doctor for an MRI. It was supposed to rule out the possibility of a tumor, crossing one more explanation for the anxiety attacks off the list.

At a little after 11 a.m. the phone rang at my desk. I recognized his cell number.

“Hello?”

He was crying. My heart sank and tears welled up before he said it.

“Aaron… my oncologist found a brain tumor.”

“Oh, no.” My gut wrenched and my head instantly hurt.

“I’m on my way home now and I have to call my parents. I’m afraid to tell them.”

“I’m leaving work and coming over.”

At 29, he’s already a three-time cancer survivor. His body is a topographical map of scars. Six inches below his right knee his leg turns from flesh to silicone. All bodies have a story, I believe. Casey’s story is just more visible than most.

When his parents arrived at his loft yesterday afternoon, I returned to my apartment to give them time alone. I took off my clothes and turned on a hot shower. For 30 minutes I stood with my forehead against the cold tile and the water running down my back. It’s easiest to imagine the worst, and I did… My thoughts running wild down a dark path enabled by the unknown.

And then I turned off the faucet and dried off. And I opened my work laptop and worked.

For the seven months that I’ve known him, Casey has consistently shown me that no matter what the situation, life is good and that it is meant to enjoy. Through cool evenings under a canopy of stars in the Wisconsin woods, hours working together in the same office and the frequent bubble baths that we share, I’ve been lucky to discover and fall in love with someone who doesn’t dwell on the difficult things, but who savors the good. I don’t know a single person who knows him who would disagree.

There is no doubt that this sucks and that it’s scary. It seems unfair and unbelievable. My heart aches, and it ached to see Casey’s parents hug him yesterday. But this also is one more chance to lean on the web of loved ones, to grow closer and to find real beauty and love among the ashes. Casey’s strength already sustains me, and it’s my job and honor to offer the same, along with the many other loved ones in his life.

There are more questions than answers at this point. Surgery will come. The indications right now point to benign. It’s one thing at a time. And throughout, life must continue.

We had planned for more than a month to see one of our favorite artists – Ray LaMontagne – in concert yesterday evening. And we did. It wasn’t even a question. We’re going, he said. It was an amazing, soothing, renewing concert that we enjoyed from our second-row seats, our hands gripped tight and bellies full from delicious tapas. And when we arrived home, bowls of ice cream with chocolate syrup greeted us for dessert.

“It was a beautiful end to a not-so-great day,” Casey said. And he meant it. I nodded in agreement. He fell asleep within five minutes of going to bed.

Posted by Aaron on November 28, 2006 8:42 PM

Comments:

Thanks for sharing this on your blog, Aaron. I hope it is benign. Best wishes to you and Casey through this rough time.

Matt B.
November 28, 2006 11:25 PM

All my best thoughts and wishes go out to Casey and you, Aaron. I will hope for only good news coming back soon.

Damion Goodrich
November 29, 2006 7:18 AM

I have no doubt that your family and friends will be able to lift you both and support you during this time of uncertainty. Know, also, that people you have never met who only know you through your pictures and words, and only know Casey through some of those words and pictures will be thinking about and praying for you both.

jeremy
November 29, 2006 8:00 AM

I've only just come across your blog, and I was deeply saddened to read about your boyfriend. I haven't read any of your blogs pre-28/11/06, but I hope to go through the archives sometime in the future. But you seem like a nice guy and all, and so I just wanted to give my best wishes to you both during this difficult journey you face ahead of you.

Joe
November 29, 2006 11:52 AM

I normally don't comment on your blog but I have been reading for a while.

I am sorry to hear about your boyfriend but it sounds like he is strong and will make it through this, especially with the support of friends and family.

Hang in there.

Cesar
November 29, 2006 12:38 PM

I'm praying for you and Casey. Sucky stuff.

Noel
November 29, 2006 3:11 PM

You both must be past the shock by now and on to wondering what it means. What does it mean? What does it mean? I'm praying for gentle answers.

Aaron
November 30, 2006 10:33 AM

Hang in there Aaron! I hope you guys get only good news going forward!

Greg/Betty
November 30, 2006 12:52 PM

My thoughts and best wishes go out to both of you.

jon d
November 30, 2006 9:54 PM

It's not easy to see something serious happen to the one you love. Personally, as a "fixer" who can't "fix it," it makes me feel worse than useless. But you've already grasped the important lesson - you're not there to fix it, your there to be there for him. Still not easy, but more satisfying in many ways.

Hang in there and healing to Casey.

John
December 1, 2006 4:58 PM